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Burden of renal angiomyolipomas associated with tuberous sclerosis complex: results of a patient and caregiver survey

BACKGROUND: Tuberous sclerosis complex (TSC) is a rare genetic disorder characterized by benign tumors in multiple organs, including non-cancerous kidney lesions known as renal angiomyolipomas. This study’s objective is to describe the age-stratified morbidity, treatment patterns, and health-related...

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Detalles Bibliográficos
Autores principales: Rentz, Anne M., Skalicky, Anne M., Liu, Zhimei, Dunn, David W., Frost, Michael D., Nakagawa, Jo Anne, Prestifilippo, Judith, Said, Qayyim, Wheless, James W.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6091699/
https://www.ncbi.nlm.nih.gov/pubmed/30294710
http://dx.doi.org/10.1186/s41687-018-0055-4