Increasing access to specialty care for rare diseases: a case study using a foundation sponsored clinic network for patients with neurofibromatosis 1, neurofibromatosis 2, and schwannomatosis

BACKGROUND: Our primary aim was to assess the ability of a non-profit foundation-sponsored clinic network to facilitate access to specialized care for patients with neurofibromatoses (NF), a group of neurogenetic disorders including NF1, NF2, and schwannomatosis (SWN). Our secondary aim was to ident...

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Detalles Bibliográficos
Autores principales: Merker, Vanessa L., Dai, Annie, Radtke, Heather B., Knight, Pamela, Jordan, Justin T., Plotkin, Scott R.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2018
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6114484/
https://www.ncbi.nlm.nih.gov/pubmed/30157837
http://dx.doi.org/10.1186/s12913-018-3471-5

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6114484/
https://www.ncbi.nlm.nih.gov/pubmed/30157837
http://dx.doi.org/10.1186/s12913-018-3471-5

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