Measuring Health-Related Quality of Life in Tuberous Sclerosis Complex – Psychometric Evaluation of Three Instruments in Individuals With Refractory Epilepsy

Tuberous sclerosis complex (TSC) is a rare genetic disease associated with significant disease burden and considerable impact on health-related quality of life (HRQL). Currently no disease-specific clinical outcome assessments evaluate HRQL in individuals with TSC. A multi-center phase III study EXI...

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Detalles Bibliográficos
Autores principales: de Vries, Petrus J., Franz, David N., Curatolo, Paolo, Nabbout, Rima, Neary, Maureen, Herbst, Fabian, Sully, Kate, Brohan, Elaine, Bennett, Bryan, Lawson, John A.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2018
Materias:
Pharmacology
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6126421/
https://www.ncbi.nlm.nih.gov/pubmed/30214408
http://dx.doi.org/10.3389/fphar.2018.00964

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6126421/
https://www.ncbi.nlm.nih.gov/pubmed/30214408
http://dx.doi.org/10.3389/fphar.2018.00964

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