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The patient journey to diagnosis and treatment of autoinflammatory diseases

BACKGROUND: Limited data are available on the experiences of patients with autoinflammatory diseases (AIDs) and their families along the path to diagnosis and treatment. We sought to describe these experiences in patients with AIDs including tumor necrosis factor receptor-associated periodic syndrom...

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Detalles Bibliográficos
Autores principales: Hausmann, Jonathan S., Lomax, Kathleen G., Shapiro, Ari, Durrant, Karen
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6127942/
https://www.ncbi.nlm.nih.gov/pubmed/30189864
http://dx.doi.org/10.1186/s13023-018-0902-7