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The patient journey to diagnosis and treatment of autoinflammatory diseases
BACKGROUND: Limited data are available on the experiences of patients with autoinflammatory diseases (AIDs) and their families along the path to diagnosis and treatment. We sought to describe these experiences in patients with AIDs including tumor necrosis factor receptor-associated periodic syndrom...
Autores principales: | Hausmann, Jonathan S., Lomax, Kathleen G., Shapiro, Ari, Durrant, Karen |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2018
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6127942/ https://www.ncbi.nlm.nih.gov/pubmed/30189864 http://dx.doi.org/10.1186/s13023-018-0902-7 |
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