Parenting a Child with Phenylketonuria (PKU): an Interpretative Phenomenological Analysis (IPA) of the Experience of Parents

Phenylketonuria (PKU) is a rare inherited metabolic disorder which can cause neurological damage if left untreated. PKU is identified through newborn screening in developed countries, and treatment begins immediately to prevent these severe consequences. When a child is diagnosed, parents must assum...

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Detalles Bibliográficos
Autores principales: Carpenter, Katie, Wittkowski, Anja, Hare, Dougal J., Medford, Emma, Rust, Stewart, Jones, Simon A., Smith, Debbie M.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer US 2018
Materias:
Original Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6132571/
https://www.ncbi.nlm.nih.gov/pubmed/29468336
http://dx.doi.org/10.1007/s10897-018-0227-7

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6132571/
https://www.ncbi.nlm.nih.gov/pubmed/29468336
http://dx.doi.org/10.1007/s10897-018-0227-7

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