Patient Governance in a Patient-Powered Research Network for Adult Rheumatologic Conditions

BACKGROUND: Patient-Powered Research Networks (PPRNs) are a unique type of patient-powered patient registry for patient-centered outcomes research requiring that stakeholder engagement play a key role in governance (eg, research guidance and decision making). The purpose of this report is to describ...

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Detalles Bibliográficos
Autores principales: Nowell, W. Benjamin, Curtis, Jeffrey R., Crow-Hercher, Rachelle
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Lippincott Williams & Wilkins 2018
Materias:
Original Articles
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6143204/
https://www.ncbi.nlm.nih.gov/pubmed/30074946
http://dx.doi.org/10.1097/MLR.0000000000000814

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6143204/
https://www.ncbi.nlm.nih.gov/pubmed/30074946
http://dx.doi.org/10.1097/MLR.0000000000000814

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