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Patient Governance in a Patient-Powered Research Network for Adult Rheumatologic Conditions
BACKGROUND: Patient-Powered Research Networks (PPRNs) are a unique type of patient-powered patient registry for patient-centered outcomes research requiring that stakeholder engagement play a key role in governance (eg, research guidance and decision making). The purpose of this report is to describ...
| Autores principales: | , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
Lippincott Williams & Wilkins
2018
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6143204/ https://www.ncbi.nlm.nih.gov/pubmed/30074946 http://dx.doi.org/10.1097/MLR.0000000000000814 |