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Crohn’s and Colitis Foundation of America Partners Patient-Powered Research Network: Patient Perspectives on Facilitators and Barriers to Building an Impactful Patient-Powered Research Network

BACKGROUND: To build a Patient-Powered Research Networks (PPRN) that prioritizes the needs of its members who have inflammatory bowel diseases (IBD), we sought to better understand patients’ preferences for what are the essential features that will facilitate and sustain engagement. METHODS: We cond...

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Detalles Bibliográficos
Autores principales: Chung, Arlene E., Vu, Maihan B., Myers, Kelly, Burris, Jessica, Kappelman, Michael D.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Lippincott Williams & Wilkins 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6143211/
https://www.ncbi.nlm.nih.gov/pubmed/30074949
http://dx.doi.org/10.1097/MLR.0000000000000771