Deciding on cystic fibrosis carrier screening: three citizens’ juries and an online survey

BACKGROUND: Health technology assessment and ethical issues have to be dealt with in deciding on national carrier screening for cystic fibrosis (CF)—the most frequent severe autosomal recessive disease in Caucasian populations and several stakeholders need to be involved. A citizens’ jury is one way...

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Detalles Bibliográficos
Autores principales: Mosconi, Paola, Colombo, Cinzia, Roberto, Anna, Candiani, Giulia, Greco, Maria Teresa, Satolli, Roberto, Castellani, Carlo
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2018
Materias:
Miscellaneous
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6148966/
https://www.ncbi.nlm.nih.gov/pubmed/29562330
http://dx.doi.org/10.1093/eurpub/cky032

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6148966/
https://www.ncbi.nlm.nih.gov/pubmed/29562330
http://dx.doi.org/10.1093/eurpub/cky032

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