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Deciding on cystic fibrosis carrier screening: three citizens’ juries and an online survey
BACKGROUND: Health technology assessment and ethical issues have to be dealt with in deciding on national carrier screening for cystic fibrosis (CF)—the most frequent severe autosomal recessive disease in Caucasian populations and several stakeholders need to be involved. A citizens’ jury is one way...
Autores principales: | Mosconi, Paola, Colombo, Cinzia, Roberto, Anna, Candiani, Giulia, Greco, Maria Teresa, Satolli, Roberto, Castellani, Carlo |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Oxford University Press
2018
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6148966/ https://www.ncbi.nlm.nih.gov/pubmed/29562330 http://dx.doi.org/10.1093/eurpub/cky032 |
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