Cargando…

Deciding on cystic fibrosis carrier screening: three citizens’ juries and an online survey

BACKGROUND: Health technology assessment and ethical issues have to be dealt with in deciding on national carrier screening for cystic fibrosis (CF)—the most frequent severe autosomal recessive disease in Caucasian populations and several stakeholders need to be involved. A citizens’ jury is one way...

Descripción completa

Detalles Bibliográficos
Autores principales:	Mosconi, Paola, Colombo, Cinzia, Roberto, Anna, Candiani, Giulia, Greco, Maria Teresa, Satolli, Roberto, Castellani, Carlo
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Oxford University Press 2018
Materias:	Miscellaneous
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6148966/ https://www.ncbi.nlm.nih.gov/pubmed/29562330 http://dx.doi.org/10.1093/eurpub/cky032

Ejemplares similares

Cystic fibrosis: to screen or not to screen? Involving a Citizens' jury in decisions on screening carrier
por: Mosconi, Paola, et al.
Publicado: (2014)

Involving a Citizens’ Jury in Decisions on Individual Screening for Prostate Cancer
por: Mosconi, Paola, et al.
Publicado: (2016)

Surgeons against Juries and Shysters
Publicado: (1870)

Personalised informed choice on evidence and controversy on mammography screening: study protocol for a randomized controlled trial
por: Roberto, Anna, et al.
Publicado: (2017)

The molecular jury: deciding whether immature thymocytes should live or die
Publicado: (1996)

Angels or demons? You decide!
por: Graphic Design
Publicado: (2009)

Do consumer voices in health‐care citizens’ juries matter?
por: Krinks, Rachael, et al.
Publicado: (2015)

Does a consumer training work? a follow-up survey of the PartecipaSalute training programs
por: Mosconi, Paola, et al.
Publicado: (2012)

Commercial use of health data—A public “trial” by citizens' jury
por: Tully, Mary P., et al.
Publicado: (2019)

Engaging the public in healthcare decision-making: quantifying preferences for healthcare through citizens’ juries
por: Scuffham, Paul A, et al.
Publicado: (2014)

Evaluating the use of citizens’ juries in food policy: a case study of food regulation
por: Henderson, Julie, et al.
Publicado: (2013)

Public attitudes towards novel reproductive technologies: a citizens’ jury on mitochondrial donation
por: Newson, A J, et al.
Publicado: (2019)

Sharing administrative health data with private industry: A report on two citizens' juries
por: Street, Jackie, et al.
Publicado: (2021)

Public perspectives on acquired brain injury rehabilitation and components of care: A Citizens’ Jury
por: Lannin, Natasha A., et al.
Publicado: (2020)

Informing women about hormone replacement therapy: the consensus conference statement
por: Mosconi, Paola, et al.
Publicado: (2009)

Yes, The Government Should Tax Soft Drinks: Findings from a Citizens’ Jury in Australia
por: Moretto, Nicole, et al.
Publicado: (2014)

Citizens’ Juries: When Older Adults Deliberate on the Benefits and Risks of Smart Health and Smart Homes
por: Chadborn, Neil H., et al.
Publicado: (2019)

Developing and applying a deductive coding framework to assess the goals of Citizen/Community Jury deliberations
por: Scott, Anna Mae, et al.
Publicado: (2019)

A citizens' jury on euthanasia/assisted dying: Does informed deliberation change people's views?
por: Walker, Simon, et al.
Publicado: (2019)

Trading off accuracy and explainability in AI decision-making: findings from 2 citizens’ juries
por: van der Veer, Sabine N, et al.
Publicado: (2021)

Juris International
por: Université de Nancy 2. Juripole de Lorraine, et al.
Publicado: (2000)

Public Preferences in Resource Allocation for Insurance Coverage of Dental Implant Service in South Korea: Citizens’ Jury
por: Lee, Hwa-Young, et al.
Publicado: (2021)

Sharing individual participant data from clinical studies: a cross-sectional online survey among Italian patient and citizen groups
por: Colombo, Cinzia, et al.
Publicado: (2019)

Informing Women on Menopause and Hormone Therapy: Know the Menopause a Multidisciplinary Project Involving Local Healthcare System
por: Donati, Serena, et al.
Publicado: (2013)

Should free-text data in electronic medical records be shared for research? A citizens’ jury study in the UK
por: Ford, Elizabeth, et al.
Publicado: (2020)

Are citizen juries and assemblies on climate change driving democratic climate policymaking? An exploration of two case studies in the UK
por: Wells, Rebecca, et al.
Publicado: (2021)

Pancreatic cystosis in cystic fibrosis: Sometimes a bike ride can help you decide
por: Di Paolo, Marcello, et al.
Publicado: (2020)

A jury of matrons.
por: Forbes, T R
Publicado: (1988)

Jury Trials and Insanity
por: Laycock,
Publicado: (1868)

"Riders" by Coroners' Juries
Publicado: (1916)

Newborn Screening for Cystic Fibrosis: Over the Hump, Still Need to Fine-Tune It
por: Castellani, Carlo
Publicado: (2020)

Learning from the public: citizens describe the need to improve end-of-life care access, provision and recognition across Europe
por: Daveson, Barbara A., et al.
Publicado: (2014)

Cystic fibrosis carriers are at increased risk for a wide range of cystic fibrosis-related conditions
por: Miller, Aaron C., et al.
Publicado: (2020)

Investigating the Extent to Which Patients Should Control Access to Patient Records for Research: A Deliberative Process Using Citizens’ Juries
por: Tully, Mary P, et al.
Publicado: (2018)

How a deliberative approach includes women in the decisions of screening mammography: a citizens' jury feasibility study in Andalusia, Spain
por: Baena-Cañada, José M, et al.
Publicado: (2018)

Are people in residential care entitled to receive rehabilitation services following hip fracture? Views of the public from a citizens’ jury
por: Crotty, Maria, et al.
Publicado: (2020)

Jury selection - Photowalk 2018
por: Favero, Cedric, et al.
Publicado: (2018)

A Coroner and His Jury
Publicado: (1901)

Exemption from Jury Duty
Publicado: (1881)

Verdict of a Coroner’s Jury
Publicado: (1885)

Cannot write session to /tmp/vufind_sessions/sess_lj28sq8226ko8lkm60c9hovrg9