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Overcoming barriers to the involvement of deafblind people in conversations about research: recommendations from individuals with Usher syndrome

PLAIN ENGLISH SUMMARY: Usher syndrome is the most common cause of deafblindness worldwide and is estimated to affect between 3 and 6 people in every 100,000. Children are born with hearing loss and develop sight loss in their early years of life. A barrier to the involvement and participation of dea...

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Detalles Bibliográficos
Autores principales: Skilton, Andrew, Boswell, Emma, Prince, Kevin, Francome-Wood, Priya, Moosajee, Mariya
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6202812/
https://www.ncbi.nlm.nih.gov/pubmed/30386632
http://dx.doi.org/10.1186/s40900-018-0124-0