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Overcoming barriers to the involvement of deafblind people in conversations about research: recommendations from individuals with Usher syndrome
PLAIN ENGLISH SUMMARY: Usher syndrome is the most common cause of deafblindness worldwide and is estimated to affect between 3 and 6 people in every 100,000. Children are born with hearing loss and develop sight loss in their early years of life. A barrier to the involvement and participation of dea...
Autores principales: | Skilton, Andrew, Boswell, Emma, Prince, Kevin, Francome-Wood, Priya, Moosajee, Mariya |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2018
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6202812/ https://www.ncbi.nlm.nih.gov/pubmed/30386632 http://dx.doi.org/10.1186/s40900-018-0124-0 |
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