The Epidemiology of Transition into Adulthood of Rare Diseases Patients: Results from a Population-Based Registry

Background: Despite the fact that a considerable number of patients diagnosed with childhood-onset rare diseases (RD) survive into adulthood, limited information is available on the epidemiology of this phenomenon, which has a considerable impact both on patients’ care and on the health services. Th...

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Detalles Bibliográficos
Autores principales: Mazzucato, Monica, Visonà Dalla Pozza, Laura, Minichiello, Cinzia, Manea, Silvia, Barbieri, Sara, Toto, Ema, Vianello, Andrea, Facchin, Paola
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2018
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6210512/
https://www.ncbi.nlm.nih.gov/pubmed/30309015
http://dx.doi.org/10.3390/ijerph15102212

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6210512/
https://www.ncbi.nlm.nih.gov/pubmed/30309015
http://dx.doi.org/10.3390/ijerph15102212

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