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Trans-Atlantic collaboration: applying lessons learned from the US CF Foundation quality improvement initiative

BACKGROUND: Between 2002 and 2006 France launched a national cystic fibrois (CF) newborn screening program; organized a network of specialized CF care centers; and issued CF diagnostic and treatment standards. To continue to build on this success in 2007 the Cystic Fibrosis Center of Expertise for R...

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Detalles Bibliográficos
Autores principales: Sabadosa, Kathryn A., Godfrey, Marjorie M., Marshall, Bruce C.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6225611/
https://www.ncbi.nlm.nih.gov/pubmed/29799379
http://dx.doi.org/10.1186/s13023-017-0744-8