Mapping health care of rare diseases: the example of epidermolysis bullosa in Germany

BACKGROUND: Rare diseases affect approximately 30 million people in the European Union and present a major health issue. Over 1000 rare skin diseases are known, many of which are of genetic origin and manifest in childhood. One of these diseases is epidermolysis bullosa (EB), a genodermatosis presen...

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Detalles Bibliográficos
Autores principales: Reimer, Antonia, Bruckner-Tuderman, Leena, Ott, Hagen
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2018
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6225719/
https://www.ncbi.nlm.nih.gov/pubmed/30409176
http://dx.doi.org/10.1186/s13023-018-0944-x

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6225719/
https://www.ncbi.nlm.nih.gov/pubmed/30409176
http://dx.doi.org/10.1186/s13023-018-0944-x

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