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Mapping health care of rare diseases: the example of epidermolysis bullosa in Germany
BACKGROUND: Rare diseases affect approximately 30 million people in the European Union and present a major health issue. Over 1000 rare skin diseases are known, many of which are of genetic origin and manifest in childhood. One of these diseases is epidermolysis bullosa (EB), a genodermatosis presen...
| Autores principales: | , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
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BioMed Central
2018
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| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6225719/ https://www.ncbi.nlm.nih.gov/pubmed/30409176 http://dx.doi.org/10.1186/s13023-018-0944-x |