Federating patients identities: the case of rare diseases

BACKGROUND: Patient information in rare disease registries is generally collected from numerous data sources, necessitating the data to be federated. In addition, data for research purposes must be de-identified. Transforming nominative data into de-identified data is thus a key issue, while minimiz...

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Detalles Bibliográficos
Autores principales: Maaroufi, Meriem, Landais, Paul, Messiaen, Claude, Jaulent, Marie-Christine, Choquet, Rémy
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2018
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6233538/
https://www.ncbi.nlm.nih.gov/pubmed/30419918
http://dx.doi.org/10.1186/s13023-018-0948-6

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6233538/
https://www.ncbi.nlm.nih.gov/pubmed/30419918
http://dx.doi.org/10.1186/s13023-018-0948-6

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