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Federating patients identities: the case of rare diseases
BACKGROUND: Patient information in rare disease registries is generally collected from numerous data sources, necessitating the data to be federated. In addition, data for research purposes must be de-identified. Transforming nominative data into de-identified data is thus a key issue, while minimiz...
| Autores principales: | , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
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BioMed Central
2018
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6233538/ https://www.ncbi.nlm.nih.gov/pubmed/30419918 http://dx.doi.org/10.1186/s13023-018-0948-6 |