“I Don’t Want to be Henrietta Lacks”: Diverse Patient Perspectives on Donating Biospecimens for Precision Medicine Research

PURPOSE: To determine whether patients distinguish between biospecimens and electronic health records (EHRs) when considering research participation to inform research protections. METHODS: We conducted 20 focus groups with individuals who identified as African American, Hispanic, Chinese, South Asi...

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Detalles Bibliográficos
Autores principales: Lee, Sandra S.-J., Cho, Mildred K., Kraft, Stephanie A., Varsava, Nina, Gillespie, Katie, Ormond, Kelly E., Wilfond, Benjamin S., Magnus, David
Formato: Online Artículo Texto
Lenguaje:English
Publicado: 2018
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6289900/
https://www.ncbi.nlm.nih.gov/pubmed/29887604
http://dx.doi.org/10.1038/s41436-018-0032-6

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6289900/
https://www.ncbi.nlm.nih.gov/pubmed/29887604
http://dx.doi.org/10.1038/s41436-018-0032-6

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