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“I Don’t Want to be Henrietta Lacks”: Diverse Patient Perspectives on Donating Biospecimens for Precision Medicine Research
PURPOSE: To determine whether patients distinguish between biospecimens and electronic health records (EHRs) when considering research participation to inform research protections. METHODS: We conducted 20 focus groups with individuals who identified as African American, Hispanic, Chinese, South Asi...
Autores principales: | Lee, Sandra S.-J., Cho, Mildred K., Kraft, Stephanie A., Varsava, Nina, Gillespie, Katie, Ormond, Kelly E., Wilfond, Benjamin S., Magnus, David |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
2018
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6289900/ https://www.ncbi.nlm.nih.gov/pubmed/29887604 http://dx.doi.org/10.1038/s41436-018-0032-6 |
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