Development of a Consent Resource for Genomic Data Sharing in the Clinical Setting

PURPOSE: Data sharing between clinicians, laboratories, and patients is essential for improvements in genomic medicine, but obtaining consent for individual-level data sharing is often hindered by a lack of time and resources. To address this issue, the Clinical Genome Resource (ClinGen) developed t...

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Detalles Bibliográficos
Autores principales: Riggs, Erin Rooney, Azzariti, Danielle R., Niehaus, Annie, Goehringer, Scott R., Ramos, Erin M., Rodriguez, Laura Lyman, Knoppers, Bartha, Rehm, Heidi L., Martin, Christa Lese
Formato: Online Artículo Texto
Lenguaje:English
Publicado: 2018
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6292744/
https://www.ncbi.nlm.nih.gov/pubmed/29899502
http://dx.doi.org/10.1038/s41436-018-0017-5

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6292744/
https://www.ncbi.nlm.nih.gov/pubmed/29899502
http://dx.doi.org/10.1038/s41436-018-0017-5

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