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Quality improvement of clinic flow for complex genetic conditions: Using Ehlers–Danlos syndrome as a model
BACKGROUND: Genetic providers face the challenge of having adequate time to conduct a comprehensive evaluation. Hypermobile Ehlers–Danlos (hEDS) syndrome has a complex array of symptoms. An initial visit can involve approximately 60–80 min and an additional 45 min for the check‐in and checkout proce...
| Autores principales: | , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
John Wiley and Sons Inc.
2018
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6305640/ https://www.ncbi.nlm.nih.gov/pubmed/30259710 http://dx.doi.org/10.1002/mgg3.472 |