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Circumcision registry promotes precise research and fosters informed parental decisions

BACKGROUND: In 2017 Ploug and Holm argued that anonymizing individuals in the Danish circumcision registry was insufficient to protect these individuals from what they regard as the potential harms of being in the registry (overreaching social pressure, stigmatization, medicalization of a religious...

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Autores principales: Van Howe, Robert S., Frisch, Morten, Adler, Peter W., Svoboda, J. Steven
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6327488/
https://www.ncbi.nlm.nih.gov/pubmed/30626392
http://dx.doi.org/10.1186/s12910-018-0337-7
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author Van Howe, Robert S.
Frisch, Morten
Adler, Peter W.
Svoboda, J. Steven
author_facet Van Howe, Robert S.
Frisch, Morten
Adler, Peter W.
Svoboda, J. Steven
author_sort Van Howe, Robert S.
collection PubMed
description BACKGROUND: In 2017 Ploug and Holm argued that anonymizing individuals in the Danish circumcision registry was insufficient to protect these individuals from what they regard as the potential harms of being in the registry (overreaching social pressure, stigmatization, medicalization of a religious practice, discrimination and promoting polarized research). DISCUSSION: We argue that Ploug and Holm’s fears in each of the areas are misguided, not supported by the evidence, and could interfere with the gathering of accurate data. The extent of the risks and harms associated with ritual circumcision is not well known. The anonymized personal health data supplemented with the circumcision registry will enable more precise research into the medical consequences of ritual circumcision, and allow parents to make more fully informed decisions about circumcision with minimal, if any, adverse consequences.
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spelling pubmed-63274882019-01-15 Circumcision registry promotes precise research and fosters informed parental decisions Van Howe, Robert S. Frisch, Morten Adler, Peter W. Svoboda, J. Steven BMC Med Ethics Correspondence BACKGROUND: In 2017 Ploug and Holm argued that anonymizing individuals in the Danish circumcision registry was insufficient to protect these individuals from what they regard as the potential harms of being in the registry (overreaching social pressure, stigmatization, medicalization of a religious practice, discrimination and promoting polarized research). DISCUSSION: We argue that Ploug and Holm’s fears in each of the areas are misguided, not supported by the evidence, and could interfere with the gathering of accurate data. The extent of the risks and harms associated with ritual circumcision is not well known. The anonymized personal health data supplemented with the circumcision registry will enable more precise research into the medical consequences of ritual circumcision, and allow parents to make more fully informed decisions about circumcision with minimal, if any, adverse consequences. BioMed Central 2019-01-09 /pmc/articles/PMC6327488/ /pubmed/30626392 http://dx.doi.org/10.1186/s12910-018-0337-7 Text en © The Author(s). 2019 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Correspondence
Van Howe, Robert S.
Frisch, Morten
Adler, Peter W.
Svoboda, J. Steven
Circumcision registry promotes precise research and fosters informed parental decisions
title Circumcision registry promotes precise research and fosters informed parental decisions
title_full Circumcision registry promotes precise research and fosters informed parental decisions
title_fullStr Circumcision registry promotes precise research and fosters informed parental decisions
title_full_unstemmed Circumcision registry promotes precise research and fosters informed parental decisions
title_short Circumcision registry promotes precise research and fosters informed parental decisions
title_sort circumcision registry promotes precise research and fosters informed parental decisions
topic Correspondence
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6327488/
https://www.ncbi.nlm.nih.gov/pubmed/30626392
http://dx.doi.org/10.1186/s12910-018-0337-7
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