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Circumcision registry promotes precise research and fosters informed parental decisions
BACKGROUND: In 2017 Ploug and Holm argued that anonymizing individuals in the Danish circumcision registry was insufficient to protect these individuals from what they regard as the potential harms of being in the registry (overreaching social pressure, stigmatization, medicalization of a religious...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6327488/ https://www.ncbi.nlm.nih.gov/pubmed/30626392 http://dx.doi.org/10.1186/s12910-018-0337-7 |
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author | Van Howe, Robert S. Frisch, Morten Adler, Peter W. Svoboda, J. Steven |
author_facet | Van Howe, Robert S. Frisch, Morten Adler, Peter W. Svoboda, J. Steven |
author_sort | Van Howe, Robert S. |
collection | PubMed |
description | BACKGROUND: In 2017 Ploug and Holm argued that anonymizing individuals in the Danish circumcision registry was insufficient to protect these individuals from what they regard as the potential harms of being in the registry (overreaching social pressure, stigmatization, medicalization of a religious practice, discrimination and promoting polarized research). DISCUSSION: We argue that Ploug and Holm’s fears in each of the areas are misguided, not supported by the evidence, and could interfere with the gathering of accurate data. The extent of the risks and harms associated with ritual circumcision is not well known. The anonymized personal health data supplemented with the circumcision registry will enable more precise research into the medical consequences of ritual circumcision, and allow parents to make more fully informed decisions about circumcision with minimal, if any, adverse consequences. |
format | Online Article Text |
id | pubmed-6327488 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2019 |
publisher | BioMed Central |
record_format | MEDLINE/PubMed |
spelling | pubmed-63274882019-01-15 Circumcision registry promotes precise research and fosters informed parental decisions Van Howe, Robert S. Frisch, Morten Adler, Peter W. Svoboda, J. Steven BMC Med Ethics Correspondence BACKGROUND: In 2017 Ploug and Holm argued that anonymizing individuals in the Danish circumcision registry was insufficient to protect these individuals from what they regard as the potential harms of being in the registry (overreaching social pressure, stigmatization, medicalization of a religious practice, discrimination and promoting polarized research). DISCUSSION: We argue that Ploug and Holm’s fears in each of the areas are misguided, not supported by the evidence, and could interfere with the gathering of accurate data. The extent of the risks and harms associated with ritual circumcision is not well known. The anonymized personal health data supplemented with the circumcision registry will enable more precise research into the medical consequences of ritual circumcision, and allow parents to make more fully informed decisions about circumcision with minimal, if any, adverse consequences. BioMed Central 2019-01-09 /pmc/articles/PMC6327488/ /pubmed/30626392 http://dx.doi.org/10.1186/s12910-018-0337-7 Text en © The Author(s). 2019 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated. |
spellingShingle | Correspondence Van Howe, Robert S. Frisch, Morten Adler, Peter W. Svoboda, J. Steven Circumcision registry promotes precise research and fosters informed parental decisions |
title | Circumcision registry promotes precise research and fosters informed parental decisions |
title_full | Circumcision registry promotes precise research and fosters informed parental decisions |
title_fullStr | Circumcision registry promotes precise research and fosters informed parental decisions |
title_full_unstemmed | Circumcision registry promotes precise research and fosters informed parental decisions |
title_short | Circumcision registry promotes precise research and fosters informed parental decisions |
title_sort | circumcision registry promotes precise research and fosters informed parental decisions |
topic | Correspondence |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6327488/ https://www.ncbi.nlm.nih.gov/pubmed/30626392 http://dx.doi.org/10.1186/s12910-018-0337-7 |
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