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“Living an Obstacle Course”: A Qualitative Study Examining the Experiences of Caregivers of Children with Rett Syndrome

Background: Rett syndrome has considerable effects on the quality of life of affected children, impairing everyday activities and potentially impacting the life of both the caregivers and the family. Our aim was to explore the experiences of a group of caregivers of children with Rett syndrome with...

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Detalles Bibliográficos
Autores principales: Palacios-Ceña, Domingo, Famoso-Pérez, Pilar, Salom-Moreno, Jaime, Carrasco-Garrido, Pilar, Pérez-Corrales, Jorge, Paras-Bravo, Paula, Güeita-Rodriguez, Javier
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6338949/
https://www.ncbi.nlm.nih.gov/pubmed/30585176
http://dx.doi.org/10.3390/ijerph16010041