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People-powered data collaboratives: fueling data science with the health-related experiences of individuals

The creation of people-driven data collaboratives, with governance structures that enable participants to have a meaningful voice in issues surrounding the use of their own data, is a novel strategy to harness our growing capacity to develop and maintain immense data assets from the real health expe...

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Detalles Bibliográficos
Autores principales: Evans, Barbara J, Krumholz, Harlan M
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6339513/
https://www.ncbi.nlm.nih.gov/pubmed/30576557
http://dx.doi.org/10.1093/jamia/ocy159