Emotional experience in parents of children with Zellweger spectrum disorders: A qualitative study

Zellweger spectrum disorders (ZSDs) are rare, debilitating genetic diseases of peroxisome biogenesis that require constant management and lifelong care. Nevertheless, the experience of family caregivers for children diagnosed with ZSD is not well understood. In this study, we sought to characterize...

Descripción completa

Detalles Bibliográficos
Autores principales: Bose, Mousumi, Mahadevan, Meena, Schules, Dana R., Coleman, Rory K., Gawron, Kelly M., Gamble, Melissa B., Roullet, Jean-Baptiste, Gibson, K. Michael, Rizzo, William B.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier 2019
Materias:
Research Paper
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6377409/
https://www.ncbi.nlm.nih.gov/pubmed/30815361
http://dx.doi.org/10.1016/j.ymgmr.2019.100459

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6377409/
https://www.ncbi.nlm.nih.gov/pubmed/30815361
http://dx.doi.org/10.1016/j.ymgmr.2019.100459

Ejemplares similares