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Emotional experience in parents of children with Zellweger spectrum disorders: A qualitative study
Zellweger spectrum disorders (ZSDs) are rare, debilitating genetic diseases of peroxisome biogenesis that require constant management and lifelong care. Nevertheless, the experience of family caregivers for children diagnosed with ZSD is not well understood. In this study, we sought to characterize...
| Autores principales: | , , , , , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
Elsevier
2019
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6377409/ https://www.ncbi.nlm.nih.gov/pubmed/30815361 http://dx.doi.org/10.1016/j.ymgmr.2019.100459 |