Needs management in families affected by childhood-onset dystrophinopathies

PURPOSE: To collect information about the needs of families affected by childhood-onset dystrophinopathies residing in the United States. METHODS: Individuals with an eligible dystrophinopathy were identified by the Muscular Dystrophy Surveillance, Tracking, and Research network. Between September 2...

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Detalles Bibliográficos
Autores principales: Conway, Kristin M, Eichinger, Katy, Trout, Christina, Romitti, Paul A, Mathews, Katherine D, Pandya, Shree K
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2019
Materias:
Original Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6399767/
https://www.ncbi.nlm.nih.gov/pubmed/30854202
http://dx.doi.org/10.1177/2050312119834470

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6399767/
https://www.ncbi.nlm.nih.gov/pubmed/30854202
http://dx.doi.org/10.1177/2050312119834470

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