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‘Staying strong on the inside and outside’ to keep walking and moving around: Perspectives from Aboriginal people with Machado Joseph Disease and their families from the Groote Eylandt Archipelago, Australia

Machado Joseph Disease (MJD) (spinocerebellar ataxia 3) is a hereditary neurodegenerative disease causing progressive ataxia and loss of mobility. It is the most common spinocerebellar ataxia worldwide. Among Aboriginal families of Groote Eylandt and related communities across Australia’s Top End, M...

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Detalles Bibliográficos
Autores principales: Carr, Jennifer J., Lalara, Joyce, Lalara, Gayangwa, O’Hare, Gloria, Massey, Libby, Kenny, Nick, Pope, Kate E., Clough, Alan R., Lowell, Anne, Barker, Ruth N.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6411155/
https://www.ncbi.nlm.nih.gov/pubmed/30856185
http://dx.doi.org/10.1371/journal.pone.0212953