Parental Interest in Genomic Sequencing of Newborns: Enrollment Experience from the BabySeq Project

PURPOSE: Newborn genomic sequencing (nGS) has great potential to improve pediatric care. Parental interest and concerns about genomics are relatively unexplored. Understanding why parents decline research consent for nGS may reveal implementation barriers. METHODS: We evaluated parental interest in...

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Detalles Bibliográficos
Autores principales: Genetti, Casie A., Schwartz, Talia S., Robinson, Jill O., VanNoy, Grace E., Petersen, Devan, Pereira, Stacey, Fayer, Shawn, Peoples, Hayley A., Agrawal, Pankaj B., Betting, Wendi N., Holm, Ingrid A., McGuire, Amy L., Waisbren, Susan E., Yu, Timothy W., Green, Robert C., Beggs, Alan H., Parad, Richard B.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: 2018
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6420384/
https://www.ncbi.nlm.nih.gov/pubmed/30209271
http://dx.doi.org/10.1038/s41436-018-0105-6

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6420384/
https://www.ncbi.nlm.nih.gov/pubmed/30209271
http://dx.doi.org/10.1038/s41436-018-0105-6

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