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State of care for patients with systemic autoinflammatory diseases – Results of a tertiary care survey

BACKGROUND: Systemic autoinflammatory diseases (SAIDs) are rare debilitating disorders of which there is limited awareness and a significant delay in diagnosis. There is no uniform approach in the diagnosis and treatment of these disorders and the real life state of SAID patient care is poorly chara...

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Detalles Bibliográficos
Autores principales: Chuamanochan, Mati, Weller, Karsten, Feist, Eugen, Kallinich, Tilmann, Maurer, Marcus, Kümmerle-Deschner, Jasmin, Krause, Karoline
Formato: Online Artículo Texto
Lenguaje:English
Publicado: World Allergy Organization 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6439415/
https://www.ncbi.nlm.nih.gov/pubmed/30937142
http://dx.doi.org/10.1016/j.waojou.2019.100019