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State of care for patients with systemic autoinflammatory diseases – Results of a tertiary care survey
BACKGROUND: Systemic autoinflammatory diseases (SAIDs) are rare debilitating disorders of which there is limited awareness and a significant delay in diagnosis. There is no uniform approach in the diagnosis and treatment of these disorders and the real life state of SAID patient care is poorly chara...
Autores principales: | Chuamanochan, Mati, Weller, Karsten, Feist, Eugen, Kallinich, Tilmann, Maurer, Marcus, Kümmerle-Deschner, Jasmin, Krause, Karoline |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
World Allergy Organization
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6439415/ https://www.ncbi.nlm.nih.gov/pubmed/30937142 http://dx.doi.org/10.1016/j.waojou.2019.100019 |
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