Boosting care and knowledge about hereditary cancer: European Reference Network on Genetic Tumour Risk Syndromes

Approximately 27–36 million patients in Europe have one of the ~ 5.000–8.000 known rare diseases. These patients often do not receive the care they need or they have a substantial delay from diagnosis to treatment. In March 2017, twenty-four European Reference Networks (ERNs) were launched with the...

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Detalles Bibliográficos
Autores principales: Vos, Janet R., Giepmans, Lisette, Röhl, Claas, Geverink, Nicoline, Hoogerbrugge, Nicoline
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Netherlands 2018
Materias:
Short Communication
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6449296/
https://www.ncbi.nlm.nih.gov/pubmed/30302652
http://dx.doi.org/10.1007/s10689-018-0110-6

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6449296/
https://www.ncbi.nlm.nih.gov/pubmed/30302652
http://dx.doi.org/10.1007/s10689-018-0110-6

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