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Boosting care and knowledge about hereditary cancer: European Reference Network on Genetic Tumour Risk Syndromes
Approximately 27–36 million patients in Europe have one of the ~ 5.000–8.000 known rare diseases. These patients often do not receive the care they need or they have a substantial delay from diagnosis to treatment. In March 2017, twenty-four European Reference Networks (ERNs) were launched with the...
| Autores principales: | , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
Springer Netherlands
2018
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6449296/ https://www.ncbi.nlm.nih.gov/pubmed/30302652 http://dx.doi.org/10.1007/s10689-018-0110-6 |