Incorporating the patient perspective in the study of rare bone disease: insights from the osteogenesis imperfecta community

SUMMARY: There is limited research which examines health concerns of individuals with osteogenesis imperfecta (OI). Discussion groups with leaders of the adult OI community identified a broad range of medical priorities beyond fractures and brittle bones. Our work underscores the need to include pat...

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Detalles Bibliográficos
Autores principales: Swezey, T., Reeve, B.B., Hart, T.S., Floor, M.K., Dollar, C.M., Gillies, A.P., Tosi, L.L.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer London 2018
Materias:
Short Communication
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6449303/
https://www.ncbi.nlm.nih.gov/pubmed/30191258
http://dx.doi.org/10.1007/s00198-018-4690-7

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6449303/
https://www.ncbi.nlm.nih.gov/pubmed/30191258
http://dx.doi.org/10.1007/s00198-018-4690-7

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