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A Tale of Two Capacities: Including Children and Decisionally Vulnerable Adults in Biomedical Research

The participation of individuals who lack decision-making capacity is essential for advancing genomics research and neuroscience, but raises ethical and legal challenges relating to vulnerability, consent, and exclusion. Capacity differences between populations and individuals, the dynamics of capac...

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Detalles Bibliográficos
Autores principales: Dalpé, Gratien, Thorogood, Adrian, Knoppers, Bartha Maria
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6459892/
https://www.ncbi.nlm.nih.gov/pubmed/31024616
http://dx.doi.org/10.3389/fgene.2019.00289