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A Tale of Two Capacities: Including Children and Decisionally Vulnerable Adults in Biomedical Research
The participation of individuals who lack decision-making capacity is essential for advancing genomics research and neuroscience, but raises ethical and legal challenges relating to vulnerability, consent, and exclusion. Capacity differences between populations and individuals, the dynamics of capac...
Autores principales: | Dalpé, Gratien, Thorogood, Adrian, Knoppers, Bartha Maria |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Frontiers Media S.A.
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6459892/ https://www.ncbi.nlm.nih.gov/pubmed/31024616 http://dx.doi.org/10.3389/fgene.2019.00289 |
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