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Results from an online survey of adults with cystic fibrosis: Accessing and using life expectancy information
Cystic fibrosis (CF) is the one of the most common inherited diseases. It affects around 10,000 people in the UK, and the median survival age is 47. Recent developments making use of longitudinal patient registry data are producing more detailed and relevant information about predicted life expectan...
Autores principales: | , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Public Library of Science
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6461271/ https://www.ncbi.nlm.nih.gov/pubmed/30978192 http://dx.doi.org/10.1371/journal.pone.0213639 |