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From crisis to self-confidence and adaptation; Experiences of being a parent of a child with VACTERL association – A complex congenital malformation

AIM: Knowledge is scarce regarding mothers’ and fathers’ experiences of being a parent of a child with VACTERL association—a complex malformation. The aim of the study was to describe experiences of being a parent of a child with VACTERL association. METHOD: Semi-structured interviews were performed...

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Detalles Bibliográficos
Autores principales: Kassa, Ann-Marie, Engstrand Lilja, Helene, Engvall, Gunn
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6474607/
https://www.ncbi.nlm.nih.gov/pubmed/31002700
http://dx.doi.org/10.1371/journal.pone.0215751