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Channeling hope: An ethnographic study of how research encounters become meaningful for families suffering from genetic disease in Pakistan

The Pakistani population has become particularly interesting for international genetic research due to its high rates of consanguinity. Based on 5 months fieldwork in Faisalabad among Pakistani genetic researchers from December 2015–January 2016 and February–April 2017 and interviews with 36 familie...

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Detalles Bibliográficos
Autores principales: Sheikh, Zainab Afshan, Jensen, Anja M.B.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Pergamon 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6481513/
https://www.ncbi.nlm.nih.gov/pubmed/30904814
http://dx.doi.org/10.1016/j.socscimed.2019.03.024