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Approaches to governance of participant-led research: a qualitative case study

OBJECTIVES: Participant-led research (PLR) is a rapidly developing form of citizen science in which individuals can create personal and generalisable knowledge. Although PLR lacks a formal framework for ethical review, participants should not be excused from considering the ethical implications of t...

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Detalles Bibliográficos
Autores principales: Grant, Azure Dominique, Wolf, Gary Isaac, Nebeker, Camille
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6500204/
https://www.ncbi.nlm.nih.gov/pubmed/30944134
http://dx.doi.org/10.1136/bmjopen-2018-025633