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Multidisciplinary approach for patients with nephropathic cystinosis: model for care in a rare and chronic renal disease

Care for patients with chronic and rare diseases is complex, especially considering the lack of knowledge about the disease, which makes early and precise diagnosis difficult, as well as the need for specific tests, sometimes of high complexity and cost. Added to these factors are difficulties in ob...

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Detalles Bibliográficos
Autores principales: Vaisbich, Maria Helena, Satiro, Carla Aline Fernandes, Roz, Deborah, Nunes, Debora de Almeida Domingues, Messa, Ana Carola H Lobo, Lanetzki, Camila, Ferreira, Juliana Caires de Oliveira Achili
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Sociedade Brasileira de Nefrologia 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6534023/
https://www.ncbi.nlm.nih.gov/pubmed/30465592
http://dx.doi.org/10.1590/2175-8239-JBN-2018-0139