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Multidisciplinary approach for patients with nephropathic cystinosis: model for care in a rare and chronic renal disease
Care for patients with chronic and rare diseases is complex, especially considering the lack of knowledge about the disease, which makes early and precise diagnosis difficult, as well as the need for specific tests, sometimes of high complexity and cost. Added to these factors are difficulties in ob...
| Autores principales: | , , , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
Sociedade Brasileira de Nefrologia
2018
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6534023/ https://www.ncbi.nlm.nih.gov/pubmed/30465592 http://dx.doi.org/10.1590/2175-8239-JBN-2018-0139 |