The role of patient organizations in the rare disease ecosystem in India: an interview based study

BACKGROUND: Rare diseases (RDs) affect a small percentage of the population but can be severely debilitating and life-threatening. Historically, patient groups (PGs) have been the prime movers in raising awareness about these diseases and advocating for national supportive policies. They have also d...

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Detalles Bibliográficos
Autores principales: Choudhury, Mohua Chakraborty, Saberwal, Gayatri
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2019
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6542017/
https://www.ncbi.nlm.nih.gov/pubmed/31142331
http://dx.doi.org/10.1186/s13023-019-1093-6

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6542017/
https://www.ncbi.nlm.nih.gov/pubmed/31142331
http://dx.doi.org/10.1186/s13023-019-1093-6

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