The German National Action League for people with rare diseases: translating the three tiers center system into active co-operation, a one center experience

INTRODUCTION: In 2009 the European Commission called for National action plans (NAP) to improve the care for persons with rare diseases. Germany set up a NAP in 2013 suggesting a three-tiered structure of co-operating centers (CC), centers of excellence (CE) and reference centers (CR). Since then CE...

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Detalles Bibliográficos
Autores principales: Plöckinger, U., Ziagaki, A.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2019
Materias:
Position Statement
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6598233/
https://www.ncbi.nlm.nih.gov/pubmed/31248438
http://dx.doi.org/10.1186/s13023-019-1130-5

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6598233/
https://www.ncbi.nlm.nih.gov/pubmed/31248438
http://dx.doi.org/10.1186/s13023-019-1130-5

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