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The German National Action League for people with rare diseases: translating the three tiers center system into active co-operation, a one center experience
INTRODUCTION: In 2009 the European Commission called for National action plans (NAP) to improve the care for persons with rare diseases. Germany set up a NAP in 2013 suggesting a three-tiered structure of co-operating centers (CC), centers of excellence (CE) and reference centers (CR). Since then CE...
| Autores principales: | , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
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BioMed Central
2019
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| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6598233/ https://www.ncbi.nlm.nih.gov/pubmed/31248438 http://dx.doi.org/10.1186/s13023-019-1130-5 |