The experience of parents of children with rare diseases when communicating with healthcare professionals: towards an integrative theory of trust

BACKGROUND: Given the inherent complexity of rare paediatric diseases and the sensitive emotional context of the situations they create (due to the patients’ age and the tense uncertainty surrounding the progression of the disease), communication between the adults involved is a key tool in the effo...

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Detalles Bibliográficos
Autores principales: Gómez-Zúñiga, Beni, Pulido Moyano, Rafael, Pousada Fernández, Modesta, García Oliva, Alicia, Armayones Ruiz, Manuel
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2019
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6599337/
https://www.ncbi.nlm.nih.gov/pubmed/31253163
http://dx.doi.org/10.1186/s13023-019-1134-1

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6599337/
https://www.ncbi.nlm.nih.gov/pubmed/31253163
http://dx.doi.org/10.1186/s13023-019-1134-1

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