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A pilot test of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) and the Jenerette Self-Care Assessment (J-SAT) Tools in adults with sickle cell disease

BACKGROUND: The purpose of this study was to pilot test two sickle cell-specific instruments, the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) and Jenerette Self-Care Assessment Tool (J-SAT), to determine recruitment rate, percent completion of the instrument battery, a...

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Detalles Bibliográficos
Autores principales: Bulgin, Dominique, Douglas, Christian, Tanabe, Paula
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6610829/
https://www.ncbi.nlm.nih.gov/pubmed/31312513
http://dx.doi.org/10.1186/s40814-019-0471-0