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Position statement on access to care in rare liver diseases: advancements of the European reference network (ERN) RARE-LIVER
The European Reference Network for rare liver diseases (ERN RARE-LIVER) is a Europe-wide network of paediatric and adult hepatologists from expert centres in close collaboration with patient advocates from the various disease-areas covered in our ERN. The ERN is focused on providing more equitable c...
Autores principales: | , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2019
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6615270/ https://www.ncbi.nlm.nih.gov/pubmed/31287000 http://dx.doi.org/10.1186/s13023-019-1152-z |